Below is an update on Grant, the little boy on the bottom right column of my blog. His unknown muscle disease continues to slowly take his life and his time here on earth is coming to a close. Here is an excerpt of his latest update. Please keep him and his precious family in your prayers.
"Grant is still with us. He has had ups & downs. Lately, he has about 30 minutes a day where he gets a burst of energy and he plays and plays and then he gets a little crazy and very tired. At least he gets 30 minutes. There just isn't enough energy being made in his body.
Grant keeps telling us about the angels all around him. He says he sees them even during the day now. Watching him describe them is quite something. Although I do not understand what he is saying, the expression on his face is description enough. He looks at us questioning why we cannot see what he sees. I wish that I could. It must be spectacular. We just tell him, we don't get to see it yet, but tell us what you see. We've put some adjectives and descriptors on his communication machine yesterday so that we can understand what he is saying. Hopefully they will be adequate.
On a positive note, he used his (speech) machine a lot yesterday. He is getting over the frustration that it cannot read his exact thoughts and say them and is now searching through and trying to find the words to express himself. We are so thankful for it, especially as we know our time is short."
Psalm 91:11 "For he will command his angels concerning you to guard you in all your ways."