January 6, 2009

Pray for Grant

Below is an update on Grant, the little boy on the bottom right column of my blog. His unknown muscle disease continues to slowly take his life and his time here on earth is coming to a close. Here is an excerpt of his latest update. Please keep him and his precious family in your prayers.

"Grant is still with us. He has had ups & downs. Lately, he has about 30 minutes a day where he gets a burst of energy and he plays and plays and then he gets a little crazy and very tired. At least he gets 30 minutes. There just isn't enough energy being made in his body.

Grant keeps telling us about the angels all around him. He says he sees them even during the day now. Watching him describe them is quite something. Although I do not understand what he is saying, the expression on his face is description enough. He looks at us questioning why we cannot see what he sees. I wish that I could. It must be spectacular. We just tell him, we don't get to see it yet, but tell us what you see. We've put some adjectives and descriptors on his communication machine yesterday so that we can understand what he is saying. Hopefully they will be adequate.

On a positive note, he used his (speech) machine a lot yesterday. He is getting over the frustration that it cannot read his exact thoughts and say them and is now searching through and trying to find the words to express himself. We are so thankful for it, especially as we know our time is short."

Psalm 91:11 "For he will command his angels concerning you to guard you in all your ways."

10 comments:

littlerad said...

Grant and his family and friends are in my prayers...
Nancy thank you for the comments, I am loving being home with my kids... I am writing my book, and I am loving it... I will be posting about it as I write it...
You are in my prayers...
Connie
GBU

Amy E. said...

I will keep that precious family in my prayers..thanks for the update

Lking said...

I will pray for the family. I know it must be hard to see your child suffering.
In Christ's Love
lking

Sherry said...

I will be praying for Grant and his family. It's so heartbreaking to see parents lose a child. As parents, we would like to take their place and be ill ourselves if we could. We lost a child to death in our church last week. But, God is so faithful to be there to strengthen and comfort!

Thanks for the update.

Abba's Girl said...

Thank you for the update. Grant and his family are being lifted up in prayer now.

Annette

Longmeadow Mama said...

Grant is an angel himself. What a special boy. Thank you for the update and I will be praying.
Kelli

katiegfromtennessee said...

Wow, Mrs. Nancy, the Lord loves that little boy soo much! He is precious! His life has already glorified God! Lord, You are so good to us...I will pray.

Blessings to you, Mrs. Nancy,

katiegfromtennessee

thislittlepiggy said...

Brings to mind the old song "Angels Camping All Around Me."

Praying for Grant. :o)

Gail W. said...

Thank you so much for sharing this Cheryl. For many years, I worked in intensive care - nothing has solidified my belief in the spirit like all those days and nights spent with folks in their final hours. Little Man Grant knows something the world would (does)kill for!

Gail W. said...

Okay, this is what I get for blogging for hours on end - NANCY!!!!